our blog
“If you’re going through hell, keep going.”
For last night’s midterm, I needed to memorize the definition of the word “trajectory,” as it relates to one’s life, stated as “Relatively stable long-term processes and patterns of events,
The Coronavirus Slide
About five minutes before Gianna shot these pics of our spontaneous dancing to the Cha Cha Slide, (which I’m clearly not very skilled at, but do have the ability to
Life Imitates Birth, As Per Usual
Nine months ago today, a new life was conceived. Nine months ago today, I began my day by walking my son into an operating room, for a pseudo-routine jaw surgery,
Home is Where Your Nest Is
It's 1:49 in the morning. I am keeping watch over my son while he sleeps to ensure nothing happens to compromise his breathing and/or health. (These duties are shared by
Ooh Child…
Today, but a sheer stroke of luck, I had a break in my schedule. Instead of filling it with an appointment request, I took the time to go to a
The Light at the End of the ICU Tunnel!
For over three months, I have looked at that white board in his room at the “Anticipated Discharge Date.” Blank. Empty. No ideas. (Save for Gianna who wrote a while back,
Four Things to Know
For those of you who don't really know me (and those that do but want a reminder), here are four important things to know about me.... I don't take "I
This Is Terrible. Keep Going.
Late last night we got some preliminary results of the MRI: no tumor, no aneurysm, no bleeding, no stroke, no surgical damage, no traumatic brain injury (the last three of
No Sprinkles On This Donut
I couldn’t go all the way back into the room as they prepped G for the “big donut” (without sprinkles on it, as he told me.) Instead, I directed them
Two Truths and a Lie, Oregon Trail Style
If you were in elementary or junior high school sometime in the 80's, there is a pretty strong likelihood that you played one of the most intense games ever (or
Awareness
I have been accused by many of focusing too much on my children’s disease, of creating a self-fulfilling prophecy of weakness, inability, and demise in them, and of assuming an
The Whoopie Pie Kind of Mom
My mom is amazing. She is generous, kind, loving, dedicated, and a million other inspirational things. She goes out of her way, deprives herself of sleep, and extends herself to